Before I share Mylee's miracle story, for those who are keeping track, we are officially on day 108 of our LOA wait. Seriously, 108 days of waiting. It is getting sooooo old. Every week week I pray this will be the week, and every week passes and I become even more disappointed than the last. Something tells me this upcoming week could be THE week, at least that is what we are praying for.
I've had a couple of people e-mail me privately letting me know they are thinking of us and praying for us. They have shared that they have followed our blog from back when we were bringing the boys home and have prayed for us since then and continue to do so. Between those e-mails, and the comments left, that is what is keeping me going right now. Honestly, it is so uplifting to read the positive comments or to know that complete strangers are praying right along with us that we are united with our daughter very soon.
I am in complete awe of how much our fundraiser goal has jumped within the last week. I am really starting to think that once we meet our goal we will get our LOA (or at least that is what several other people have suggested). I would love to have met our goal by the time we get LOA and maybe that is what God is waiting on, so lets give Him a good reason to bring us one step closer to Kalia. We still have quite a ways to go, but just the fact that we are over 50% of the way is so humbling. Nothing is too big for God, and I am certain that He is going to let nothing, especially money stand in the way of me wrapping my arms around my daughter.
Now for Miss Mylee's Miracle...
Oh Miss Mylee is a riot. We had her 6 month check up from her last surgery this past Monday at Riley Childrens Hospital with the infamous (to Mylee) Dr. Loder. He truly is an awesome doctor and luckily Mylee LOVES him. On the way down she colored a picture of him in his white lab coat, complete with his name tag. She put glasses on him and made sure his hair was gray as well. She most definitely pays attention to detail.
After looking at her legs he looked up at me and said, "I feel terrible, I just don't think we made much progress with this last surgery. After everything we put her through, I was really hoping for better results." I told him we would not have know has we at least not tried. So, we went on to discuss further treatment. Mylee's knees still do not bend compltely and probably never will. She can sit on her knees, but that is as far as she can get. As for her ankles, her right isn't too bad, but her left (that is the one they worked on back in February), is still really, really tight.
The plan for now is to have her re-checked every 6 months to see her growth pattern. Then when she is 8 or 9 he may want to cut into her bone right where her leg and foot meet and put some type of flexible piece in there to create more flexibility when she is walking. Mylee heard this and about flew off the table saying "no, no, you are not going to cut my bone." After calming her down and explaining to her that we weren't going to do anything right then, she was a little better.
We also discussed how her feet are so wide near her toes and very narrow at her heels which makes it extrememly difficutl to find shoes to fit her right. So he had the orthodics guy come down and make a heel insert to put in her shoes. They also put a little lift on them hopefully keep her from falling as much. Once they were done and in her shoes they had her walk back and forth across the room to make sure they were okay. As she was walking she looked up and very seriously said "it's a miracle." The ortho guy looked up and asked what she said and when I told him, she siad "yep, it's a miracle, I can walk good."
That girl cracks me up! She is always coming up with something and never misses a beat. She was adamant about me not forgetting to wear her special heel things to school on Tuesday. The first thing she said when she walked in the door was "mom, they work, I didn't fall much today at school. Aren't you so proud of me!"
Oh, and here is a little sneak peek of what is to come next week...